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 August 2022 - Data protection in a global economy
Issue Editor : Dr Laure Tabouy, PhD
Neuroscientist and ethicist, Ethics and Epistemology team, CESP-INSERM U1018, Espace éthique APHP, Université de Paris-Saclay
Editorial: Marie-Laure DENIS
State Councillor, President of the CNIL
Introduction: What kind of world do we want? How far can and should we go?
Dr Laure TABOUY, PhD
Neuroscientist and ethicist, Ethics and Epistemology team, CESP-INSERM U1018, Espace éthique APHP, Université de Paris-Saclay
1 ‒ Data use: private companies and academic research, together for a more responsible future of data management
In a world that is both connected and in tension, what are the challenges and approaches to ensure the value and protection of data?
Jérôme Andres,
Secure Information and Communication Systems, Thales Group
Targeting, through data, the breaks in the healthcare pathways: an opportunity for patients and innovators
Marco Fiorini,
Director of the ‟Artificial Intelligence and Cancer” project of the strategic contract for the healthcare industries and technologies,
Stéphanie Kervestin,
General Delegate of Ariis (Alliance for Research and Innovation in the Healthcare Industry),
and
Virginie Lasserre,
Director of External Affairs at Janssen France, co-leader of the ‟AI and Care Pathways” axis of the strategic contract for the healthcare industries and technologies sector
Towards a right of ownership of personal data
Alain Bensoussan,
Attorney at Law, Lexing Alain Bensoussan Avocats
What rights for data in a data-centric economy?
Bertrand Warusfel,
Professor at University of Paris 8, member of the Paris Bar (FWPA)
Data-driven and AI in healthcare: bringing the ‟Human Guarantee” MedTech and HealthTech ecosystem to life!
David Gruson,
Director of the Luminess Health Program and co-founder of Ethik-IA
People in the Sun: light up your data
Charles Huot,
People in the Sun Company
Valorization of human health research and data protection in the digital age
Frédérique Lesaulnier,
Doctor of Law, Data Protection Officer of the Brain Institute
International research and data protection
Gaëlle Bujan,
Data Protection Officer, CNRS
Aligning access to microbiome data and privacy considerations for better solutions for health and wellbeing of society and environments
Frederik Coppens,
VIB-UGent, ELIXIR Belgium, Gent,Belgium,
Lene Lange,
BioEconomy Research & Advisory, Copenhagen, Denmark,
and
Kathleen D’Hondt,
Department Economy, Science and Innovation, Flemish Government, Brussels, Belgium
2 ‒ The data economy: what uses for data at the heart of collaborations, partnerships or collaborative platforms. What data to share? Who should have access to it?
Epistemological issues in data science
Jean-Gabriel Ganascia,
Specialist in artificial intelligence
Encryption, or the contribution of cryptology to the security of data storage, transmission and processing
Louis Goubin,
Professor at the University of Versailles Saint-Quentin-en-Yvelines – Université Paris-Saclay, director of the ‟Cryptology and Information Security” research group at the LMV laboratory (UMR CNRS 8100)
Helping researchers better manage their research data: the data librarian profession
Laetitia Bracco,
Curator of libraries at the University of Lorraine
The Health Data Hub, a lever for the valorisation of health data
Stéphanie Combes,
Director of the Health Data Hub (HDH)
Data science in health and data protection of Metavers
Adel Mebarki,
Co-founder and CEO of Kap Code
The challenges of Metaverse in terms of personal data protection
Thomas Fauré,
President and founder of Whaller
3 ‒ Humanities and data: the challenges of changing societies through data. Trust in the digital age
A decade and a half of OECD action on data governance policy-making
Elettra Ronchi,
Senior Policy Consultant on Data Governance and Digital Health WHO/Europe; former Head of the Data Governance and Privacy Unit in the Division for Digital Economy Policy at the OECD,
and
Christian Reimsbach-Kounatze,
Information Economist and Policy Analyst in the Division for Digital Economy Policy at the OECD
The CNIL faces the challenges of building a trusted digital society
Étienne Maury,
CNIL
Data altruism: how can data be used to serve the general interest?
Éric Salobir,
President of the executive committee of the Human Technology Foundation and founder of OPTIC
Has data become the primary issue in cybercrime?
Éric Freyssinet,
General officer of the Gendarmerie
The challenge of data for cyber defense
Didier Danet,
Lecturer (HDR) at the University of Rennes 1
4 ‒ What does the data say about humans?
Accountability at the heart of data protection: what data says about the human being
Dr Laure Tabouy, PhD,
Neuroscientist and ethicist, Ethics and Epistemology team, CESP- INSERM U1018, APHP Ethics Area, University of Paris-Saclay
Concluding Remarks
Dr Laure Tabouy, PhD,
Neuroscientist and ethicist, Ethics and Epistemology team, CESP- INSERM U1018, APHP Ethics Area, University of Paris-Saclay
Miscellany
Experiences with passive or positive energy buildings
Pascal Gontier,
Professor at the École nationale supérieure d’architecture de Nantes and member of the Académie d’architecture
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